Genomic Medicine Sweden is an associate partner for the next European Conference on Rare Diseases and Orphan Products that will take place on 14-16 May 2020. In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming ECRD will now take place ONLINE.

ECRD 2020 moves ONLINE

In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming ECRD will now take place ONLINE on 14-16 May (more information).

The health and safety of all stakeholders participating in ECRD, including people living with a rare disease and their carers, is our primary concern.

EURORDIS-Rare Diseases Europe is keen to move the conference online in order to maintain the planned dates. As the EU shapes its future policy and spending frameworks for the coming decade, ECRD 2020 serves as an opportunity to co-create policy options today that can lead to a better patient journey for the years ahead.

Programme

Theme 1: The future of diagnosis: new hopes, promises and challenges

Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion

Theme 3: Share, Care, Cure: Transforming care for rare diseases by 2030

Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development

Theme 5: Achieving the triple A’s by 2030: Accessible, Available and Affordable Treatments for people living with a rare disease

Theme 6: The digital health revolution: hype vs. reality

 

Find more information about the program and registration at https://www.rare-diseases.eu/