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Electronic Informed Consent to Facilitate Research on Rare Diseases

Electronic Informed Consent to Facilitate Research on Rare Diseases

29 January, 2026 | News, Nyheter

Research on rare diagnoses and the development of precision medicine depend on patients being able to share their health data in a secure and ethical manner.The research study in which a digital platform was developed to collect electronic informed consent shows that...
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Genomic Medicine Sweden
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Genomic Medicine Sweden (GMS) is a national infrastructure in precision medicine with a vision to implement precision medicine into clinical settings and strengthen the collaboration between Swedish healthcare, research and life-science industry. GMS is comprised of seven regions with university hospitals and universities with a medical faculty. Together with patient organizations, healthcare providers, universities and industry, GMS aims to translate genomic innovation, based on advanced next-generation sequencing technologies, enabling greater precision in the diagnosis, treatment and management of patients with rare disease, cancer and infectious diseases.

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